Sunday, July 09, 2006

What a Smile



For a baby that didn't start out too cute Jonathan is extremely cute now. I'm not sure if he really is that cute or if it's just his huge smile which stays on his face pretty permanently. (Unless of course there is a camera pointed at him.) (I just found out my delete key is not working, that could be a real pain in the butt.) We had Sabrina and Jonathan all day yesterday and they were fun. We have Josh right now and are expecting Bryan and Sean in a few minutes. I have missed these kids something awful, it's been almost a month since I have seen them.

Things are still going along with Gordon's mom, one day good, one day not so good. We had a few really bad days and then the next she was awake, alert, and responsive. It is so hard to tell what is going on and what to expect. She has been on the ventilator for over a week now, but for most of that it has been turned off and the machine was not breathing only giving oxygen support much like the tubes that go under the nose. On Friday we found out that although the vent has been turned off and she had been breathing on her own since Tuesday they had been turning it back on at night so that she could rest. Yesterday it was turned back on full time, this is part of that up and down. Wednesday they talked of taking the vent out on Thursday but by Thursday she had had two good days (Tuesday and Wednesday) in a row and had worked loose her arm restraints, she then attempted full scale extubation on her own starting with the feeding tube in her nose. This caused her anxiety level to soar, and she had to be sedated and given new restraints very similar to boxing gloves. I was there on Friday to speak with the nurse and we found out that it is her anxiety level that is keeping her on the vent and I have no idea how they can fix that. She has a high anxiety level sitting on her own couch, short of keeping her totally sedated (in which case they cannot remove the vent) I don't see her being unanxious while in the hospital. So we will have to see what will happen, they can't leave the vent in much longer as it is too prone to causing infection and if they need to keep her on the machine they will need to consider putting in a permanent tracheotomy. It's a hell of a decision to have to make, trying to define quality of life. It's one thing to be kept alive in a vegetative state and another to be kept alive alert and responsive but unable to do the things you want to do.

On a much happier note I am getting rid of Megan for a couple of weeks. Some suckers in California have agreed to entertain her. I haven't quite worked out how she's getting to the airport but have no fears she will be there.

3 comments:

Megan said...

Hey!!!!!! I'm happy to be going. I get a break from everything. YAY. But don't forget I will be back!

Caitlyn's Mommy said...

"Free" babysitter...I is just nice to be getting her for a while. At least you got to see her first!

Melody Beth said...

We need a new blog mommy